Howe Family

Howe Family

Thursday, June 11, 2015

Quick update with the promise of more to come

Life after diagnosis has been interesting. Some days are better than others, and we're all handling it differently. During our time in Columbia we've been blessed with some great therapists and other advocates for Tucker. However, the time has come to move on. As many of your know, we are moving to Washington State in roughly 5 weeks. A combination of factors have lead us to this decision, but two were more weighty than the rest:  The proximity of family and the presence of a top 5 children's hospital for Tucker's condition. These two things are going to be life changers for our family.

In the mean time there are several of us who are training for a half marathon in September! We are running the Disneyland Half Marathon with the group Run For Our Sons (www.runforoursons.org) as a way to raise money for research committed to finding a cure for DMD. Check out the website and please consider donating to the cause. Tucker and boys across the world need all the help and support we can give.

It has been a crazy time in our lives but we are committing to keep this blog better updated so that we can keep y'all appraised of what is going on in our lives and what's coming up on the horizon.

http://www.parentprojectmd.org/site/TR/Events/General?team_id=11280&pg=team&fr_id=3450

Saturday, January 17, 2015

Life Isn't Fair.

We don't really know what to write. Some of you know what is going on, but we thought it would be nice to have as many people praying and hoping with us as we go through a difficult time we never could have foreseen.

Tucker, our sweet, loving, amazing little boy, has been preliminarily diagnosed with Duchenne Muscular Dystrophy.  DMD is a genetic disorder characterized by progressive muscular degeneration and weakness. It, not only, significantly decreases life expectancy but it also currently has no cure. We take Tucker in for genetic testing on Thursday, January 22nd at 1:15 pm. It will take roughly four weeks to receive an official diagnosis based on those test results. All that being said, he is still such a happy, loving, and goofy kid.

Please think of us and keep us in your prayers.  We are having a very hard time processing this and it has been an emotional month, to say the least. We have some very important decisions to make and hope that God makes it clear what decisions or path to take.