Life after diagnosis has been interesting. Some days are better than others, and we're all handling it differently. During our time in Columbia we've been blessed with some great therapists and other advocates for Tucker. However, the time has come to move on. As many of your know, we are moving to Washington State in roughly 5 weeks. A combination of factors have lead us to this decision, but two were more weighty than the rest: The proximity of family and the presence of a top 5 children's hospital for Tucker's condition. These two things are going to be life changers for our family.
In the mean time there are several of us who are training for a half marathon in September! We are running the Disneyland Half Marathon with the group Run For Our Sons (www.runforoursons.org) as a way to raise money for research committed to finding a cure for DMD. Check out the website and please consider donating to the cause. Tucker and boys across the world need all the help and support we can give.
It has been a crazy time in our lives but we are committing to keep this blog better updated so that we can keep y'all appraised of what is going on in our lives and what's coming up on the horizon.
http://www.parentprojectmd.org/site/TR/Events/General?team_id=11280&pg=team&fr_id=3450
While my heart aches for so many reasons reading this entry, I know this is best for your family and that precious boy. I also know this isn't the end for our wonderful friendship, or for our kids. I love you all so much and cannot wait to see what God has planned and in store for your family and that sweet boy.
ReplyDeleteBroken Promises.... :)
ReplyDeleteHow is school? How is the new place? Do you have a new Karina and Deshae? What's Parker up to?